International Symposium on Usher Syndrome

USH 2018 – July 19-21, 2018 in Mainz, Germany

International Symposium on Usher Syndrome

The International Symposium on Usher Syndrome at the Atrium Conference Centre in Mainz on July 19-21, 2018 was a full success, an unprecedented number attendees from all over the world were represented. We want to express our gratitude to the speakers and volunteers, the foundations and sponsors. Their valuable contributions have made USH2018 a full success.

The videos and transcripts of the USH2018 Patient Symposium presentations are now available.

International Patient Symposium

All transcripts together in one PDF.

Irmgard Reichstein: Introduction
YouTube | Transcript (rtf) | Transcript (pdf)
Mark Dunning: The Power of an Usher Syndrome Community
YouTube | Transcript (rtf) | Transcript (pdf)
Christina Fasser: Welcome Address
YouTube | Transcript (rtf) | Transcript (pdf)
Dominique Sturz: Welcome Address
YouTube | Transcript (rtf) | Transcript (pdf)
Rebecca Alexander: Welcome Address
YouTube | Transcript (rtf) | Transcript (pdf)
Margaret Kenna: Diagnostic and genetics of Usher Syndrome
YouTube | Transcript (rtf) | Transcript (pdf)
Uwe Wolfrum: Cell and molecular biology of Usher Syndrome
YouTube | Transcript (rtf) | Transcript (pdf)
Gwenaëlle Géléoc: Therapy of Usher Syndrome
YouTube | Transcript (rtf) | Transcript (pdf)
Isabelle Audo: Update USHStat Myo7 and other clinical trials
YouTube | Transcript (rtf) | Transcript (pdf)
Eberhart Zrenner: Retina implant and electrostimulation
YouTube | Transcript (rtf) | Transcript (pdf)
Darija Udovicic Mahmuljin: Steps Toward Better Life: Improving access and quality of education for DB and MD children and youth through partnerships – global campaign
YouTube | Transcript (rtf) | Transcript (pdf)
Kimberley Smith: Psychosocial well-being and health-related quality of life in a UK population with Usher Syndrome
YouTube | Transcript (rtf) | Transcript (pdf)
Thomas Lenarz: Cochlear implant technology
YouTube | Transcript (rtf) | Transcript (pdf)
Mariya Moosajee: Clinical trial design for nonsense mutations treatment of USH2A
YouTube | Transcript (rtf) | Transcript (pdf)
Annamarie Dillon: Clinical trial design for AON treatment of USH2A
YouTube | Transcript (rtf) | Transcript (pdf)
Dorothea Kohlhaas: My experiences with Argus II and the better quality of life
YouTube | Transcript (rtf) | Transcript (pdf)
Alfred Stett: Subretinal Implant Alpha AMS – recent developments and achievements
YouTube | Transcript (rtf) | Transcript (pdf)
Julia Moser: Patients view to Usher Syndrome
YouTube | Transcript (rtf) | Transcript (pdf)
Claes Möller: The urgency of interdisciplinary healthcare and support for people with Usher Syndrome
YouTube | Transcript (rtf) | Transcript (pdf)
Podium discussion
YouTube | Transcript (rtf) | Transcript (pdf)
End of the symposium – farewell
YouTube | Transcript (rtf)

Back to top